This might seem like a bit of a strange post but I'd like to spread the word a bit about this debilitating illness I've got. It's largely unheard of, it's often not tested for and apparently the symptoms are usually quickly reversed following surgery. If reading about it saves one person from an experience I've had, and one that's apparently not uncommon, in having to work really hard to convince doctors there's something really wrong with you I'll think PRE is a monstrous success.
One of the problems is the symptoms can relate to several other illnesses. My doctor was assuming me being so unwell was due to a different problem I have. It's only when a fill in doctor saw me and ordered blood calcium tests that I was diagnosed and sent immediately to an endocrinologist and a surgeon.
Parathyroid glands are usually behind the thyroid gland. They're not related other than being in close proximity to each other.
I'm looking like needing all 4 parathyroid glands removed and having a transplant...as well as having a 3cm thyroid tumour removed while they're at it.
There are many symptoms for hyperparathyroidism. If anyone is interested they can google.
I have high blood calcium level and high Parathyroid hormone levels. Parathyroids are what control calcium in the body.
The calcium has leached out of my bones leaving me what what's described as the bones of a 90yo. A great risk of breaking them if I'm not careful.
I am extremely tired. Usually in bed around 7-8 pm and often don't wake till 9am. It's nothing for me to sleep a few hours in the day too.
I lack energy and enthusiasm.
I have short term memory loss. It's embarrassing to lose track of a conversation and not have a clue what was being talked about.
I am very cloudy headed.
I can't read a book or do bookwork.
My bones ache and have sharp pains.
I can't drive due to poor concentration.
I also have very vivid, detailed dreams and wake up in a lather of sweat during the night.
That are a few of my symptoms. I could fill a page with others, some not to be spoken of in polite company, ha. In general I feel poisoned and pretty terrible.
This isn't meant to be about me. I just see this as an opportunity that might help save someone similar suffering. I don't think doctors test for blood calcium as a matter of course. I'd been to the doctor heaps and also admitted to hospital through emergency a couple of times and had never had a calcium test. I've found a couple of support groups and my experience is far from abnormal. I'd suggest anyone feeling generally ratshit at least raises the topic of calcium levels with their GP for discussion.
Meanwhile the good news is surgery is usually very successful. Funny to say but I can't wait to have my throat slit. :angel:
One of the problems is the symptoms can relate to several other illnesses. My doctor was assuming me being so unwell was due to a different problem I have. It's only when a fill in doctor saw me and ordered blood calcium tests that I was diagnosed and sent immediately to an endocrinologist and a surgeon.
Parathyroid glands are usually behind the thyroid gland. They're not related other than being in close proximity to each other.
I'm looking like needing all 4 parathyroid glands removed and having a transplant...as well as having a 3cm thyroid tumour removed while they're at it.
There are many symptoms for hyperparathyroidism. If anyone is interested they can google.
I have high blood calcium level and high Parathyroid hormone levels. Parathyroids are what control calcium in the body.
The calcium has leached out of my bones leaving me what what's described as the bones of a 90yo. A great risk of breaking them if I'm not careful.
I am extremely tired. Usually in bed around 7-8 pm and often don't wake till 9am. It's nothing for me to sleep a few hours in the day too.
I lack energy and enthusiasm.
I have short term memory loss. It's embarrassing to lose track of a conversation and not have a clue what was being talked about.
I am very cloudy headed.
I can't read a book or do bookwork.
My bones ache and have sharp pains.
I can't drive due to poor concentration.
I also have very vivid, detailed dreams and wake up in a lather of sweat during the night.
That are a few of my symptoms. I could fill a page with others, some not to be spoken of in polite company, ha. In general I feel poisoned and pretty terrible.
This isn't meant to be about me. I just see this as an opportunity that might help save someone similar suffering. I don't think doctors test for blood calcium as a matter of course. I'd been to the doctor heaps and also admitted to hospital through emergency a couple of times and had never had a calcium test. I've found a couple of support groups and my experience is far from abnormal. I'd suggest anyone feeling generally ratshit at least raises the topic of calcium levels with their GP for discussion.
Meanwhile the good news is surgery is usually very successful. Funny to say but I can't wait to have my throat slit. :angel:
